Friday, August 21, 2009
HEY WORLD!!!! It's me, SOPHIE!!!!
Monday, August 17, 2009
a mover and a shaker, with the right inspiration...
Mark Palmer's youngest groupie.
Mark has been a friend for a number of years! He's a wonderful musician and plays locally in Morgantown and surrounding area. I was watching his latest Facebook post, a cover of "Hey Jude" by the Beatles, I looked down and there she was. She just couldn't help herself! Go Mark!!!! BTW...check out mark at http://www.markpalmermusic.com
I personally love that she inserts clapping at the "appropriate" break in the music. I've never even heard this song before, but was flipping through satellite radio. She is getting NO prompting from mama or dad. I know some may be wondering! I'm just the camera lady! hahaha
Finally, we went to the mall on Sunday to shake off some of the cobwebs in our head! It's been so hot and we've been house bound for a few days. We decided to take the walking car to the mall for Sophie so she could walk a little without our hands holding her. She is not quite ready to take off solo yet. Well, she walked, and walked, and walked......almost the ENTIRE LENGTH of the Meadowbrook Mall. Every so often she'd stop, look at a passer-by and wave. She looked like she was doing a guest appearance or something. It was hilarious. We hope to capture this on video sometime too!
Sunday, August 16, 2009
just an update...
Well, I've tried all the bests. And I SWEAR, my kid must sit around in her crib figuring out ways to blow my efforts out of the water.
Especially with feeding. I breastfeed the rugrat...Best for them, right?? It was, but she is such a skinny minnie that life was so much better when food started. I did all organic and homemade food. Woo hoo, right? WELL... here's the advice I got from the docs at our recent visit.
Feed her butter, oil, and pediasure. Yup! A healthy diet of fat, fat, and more fat.
Seriously, I know I did the right thing by her food choices. I also know that I fed the girl constantly and a huge variety of foods from all the food groups! (including fried chicken on occasion) But apparently, she has her dad's metabolism and stomache. (I'm convinced he is part goat)
After this last Dr. visit. I decided to throw in the towel. Give into the foods that aren't exactly "healthy" but kids like. I even tried to stay organic...(organic chix nuggets and turkey hot dogs)
Truthfully, the pediasure and butter are doing the trick.
Sophie has gained........
get ready....
hold onto your hats...
ONE POUND and 4 OUNCES in 2 flipping weeks.
They won't do organic at the daycare...so I guess my efforts are for not at this point anyways. Also, said they won't use "fresh" vegetables because they are a choking hazard and will only use canned.
SO MUCH FOR TRYING TO MAKE THIS KID NOT HAVE TO SUFFER THE CONSTANT WEIGHT BATTLE, HEALTH ISSUES, AND POSSIBLE HEART DISEASE WHEN SHE IS OLDER. She's already hooked on french fries, butter, and strawberry shakes!!!!!
Mom's white flag is waving high folks!
BTW....her weight: 18 lbs, 6 ounces! Still not able to turn around in the car seat yet! hahaha
Sunday, August 9, 2009
the many expressions of Sophie...what a goof!
Thursday, August 6, 2009
Our 4th visit to the Hotel de Ruby Memorial...and we got the luxury suite!
So, have I mentioned I have a "high maintenance" kid???? Have I added that I have a bit of a stubborn husband also????? Well, put them together and you have the following story:
My child spent the night in PICU last week. It was horrifying. All is well now, but you can be rest assured, I've had my practice in case something bad ever does happen to our girl.
On Monday I went "back to work" teaching music at a local Arts camp. I've been involved with the camp for over a decade, so I felt really pulled to work it again. Plus, I felt that it would be a good "stepping stone" into the world of full time teaching again, which I will be doing in 2 weeks. (UGH...2 weeks...so not fair) Also, it allowed me to "wean" a bit more, only nursing a couple times a day.
Grandma Lisa agreed to babysit and help with the whole transition. All was going well. Sophie wasn't eating as much as normal, but still putting away the food, taking naps, and having her normal 2 bm's a day. (sorry, but relative for later story details) Monday went smoothly and so did Tuesday, except....I WAS TOTALLY EXHAUSTED. I came home and begged hubbs to take care of dinner time. He was annoyed, but agreed to do the deed. As I lay in the recliner, whining about my day, he sat and fed Sophie. I kept barking orders here and there..."Do it this way." "She doesn't like when you do THAT..." etc. At one point I looked up and Hubbs had dumped an ungodly amount of blueberries on the kid's tray. I said, "SHE CAN'T EAT THAT MANY..IT WILL MAKE HER SICK." To which he affectionately replied, "WHO'S FEEDING HER????? NOW BUTT OUT."
I argued, but to no avail and was so worn out I finally gave up and just pleaded with him to believe me...He eventually stopped feeding her the blueberries. I sighed a breath of relief and went into the other room....hmmmm wonder what happened after I left????
The rest of the night Sophie was great! She was full of her favorite food, pleasant and played until bed time. She went to sleep without incident and all was right in the world... until I woke up the next day.
The key word there being, "WHEN I WOKE UP". You see, Sophie did not do her normal "wake up" call at 5am. It was nearly 8:00am and I fought every urge to run in and check her... I looked at the monitor and the lights were blinking normally. Wait, I don't hear anything...WHAT???? WHO TURNED DOWN THE &*^&* monitor????????
My husband hates the monitor. I mean...the sound that it emits. It's like scratching nails on a chalkboard to him. We have a box fan blowing in Sophie's room, so it is a constant static buzz. I always leave the monitors on, so I didn't realize he turned it down because of the fan blowing in our room. Now, before you panic, we live in a house the size of a shoe box. So Sophie is literally 6 feet away. She also does not have a door on her room, so I often hear her without the monitor at all. But still, I have been a pretty heavy sleeper lately and hubbs sleeps with earplugs.
So after cussing my husband in my head for a few moments, I decide it is best to take a peak. Although I heard no monitor sounds when I turned up the volume either.
When I went into that room I had to grab a wall to keep from passing out. In the dark, her crib looked like a murderous scene...there were stains of "blood" everywhere. The sheet, blankets, and lovey were covered in...TURN ON THE LIGHT, TURN ON THE LIGHT............Blueberry puke.
She laid there helplessly. Awake, but not willing to lift herself to more than a sitting position. I SCREAMED for hubbs to "get in here" and witness this sight. He needed to learn a lesson. I swooped my baby girl up and she began whimpering and crying softly. She was limp, lethargic and miserable. She gagged with every movement and preceded to cover me in the remnants of the blueberries left in her tummy. I attempted to give her water...she puked.....a cheerio to absorb the stomach acid...puke....I moved her slightly...puke. She began to lose eye contact with us and really started acting funny, dozing in and out, so of course we called the pediatrician and were advised to bring her in within the hour.
As we were traveling up the road, I was rubbing Sophie's head and realized her fontanel was bulging. This triggered another wall grabbing moment. I looked in her eyes....distant. Looked at her face, non-responsive. Vomiting....it all adds up......SHUNT FAILURE. You see, all of those symptoms are signs of shunt failure. Basically, the signs of a flu or food poisoning to a normal kiddo could be life or death situation for mine. I say to myself, "surely just the blueberries..."
We get to the Pediatric office and they swoop us in. Sophie pukes a few more times and gets weighed...She's lost weight. Oh great. Something else to be concerned with.
Sophie's nurse (the one who has been there for most of our appts) comes and gets us. She saw our name and was concerned. "She looks terrible Heidi, she says." I agree and we get her into a room.The pediatrician on call takes a look....a thorough look and leaves the room. They take more temps, blood pressures, checking the fontanel etc...leaves the room again.
Then, the moment I recognize from one too many moments, occurs once again...
The Voice.
The nurse and the pediatrician come back in with a worried expressions on their faces. The soft and gentle lilt flows from their lips in almost a whisper..."We've called PICU, they are preparing a room for Sophie...We've also called for a shunt series of x-rays and have you on the deck for a CT scan as well.. I'm afraid she will be staying with us for a bit to run some tests..." I've heard all this before...3 other times in fact. I get that knot in my stomach and start to feel a little nauseated myself.
But before I have time to think, we are swooped off to x-ray, then PICU....all the while the little peanut is wailing her weak and pained mournful cry. I asked, "But what about the blueberries??" They said that it may have made her a little sick to eat that many, but not the level of reaction she is having unless it was food poisoning. I tell them I have eaten the blueberries too and suffered no ill effect.
The Look is then added to the Voice.
We get done with the x-ray and are awaiting the CT scan in our new PICU room and in swoops the nurses and Drs. They hook her up to IV fluids and try to make her comfortable. They also report that the x-ray did not show anything physically wrong with the shunt, but to be sure, they must get a good look through the CAT scan.....and off we go, wheeling her in the bed to CT.
I forgot to mention that in translation from the Pediatric clinic to the PICU, someone got the impression that we were a "contagious stomach virus" or "swine flu"...so everyone getting near us was gowned in masks gloves and smocks. A very scary scene to be a part of. We are put in isolation.
They take a look at the CT scan and still feel unsure about what they are seeing, plus the fontanel is still bulging, and when they did the babinsky test on her foot to wake her up, she didn't respond, so they decide to do a "Shunt Tap".
Folks, it is what it sounds like. This involves a needle through the skull and into the actual shunt. Then they attach this "tire gauge" like device with a tall beaker on it. All the while they are restraining Sophie. Then they (when I say they, I mean 2 neurosurgeons and a neuro nurse) hold her for as long as it takes for the cerebral fluid to stop flowing into the beaker. When it stops, it gives a pressure measurement. And finally......."Sophie's pressure is completely normal and right on." "You can't get any lower than zero pressure.." "It is measuring at exactly where we set the shunt last August, a 12.
It's not the shunt!
"What about the fontanel?????" I ask. To which the neurosurgeon says, "Hmmmm, seems ok now. Don't know what caused that." "She is severely dehydrated, but normally that would cause a dip in the fontanel. We simply don't know."
What do you mean you don't know????? Aren't you geniuses????Gods?????Saviors of my daughter???? I breathe a sigh of relief and just let it go. It's not the shunt. Thank God.
So when the report of the xray and CT scan come back a couple hours later, they both had notes on them that said the abdomen showed a moderate blockage in the bowel. I informed the doctor that Sophie has been a normal and consistent pooper of 2 times a day for a month. She then informs me that, just because she poops, doesn't mean there isn't a blockage. Huh??? Makes no sense. She says that as long as the BM's that come after the constipation are soft, they can travel around the blockage and come out as normal. Who would have thought???
So, they give our girl some miralax and a glycerin suppository, along with the IV fluids. At 3 am she comes around. Finally.
Then, later that morning...she had a BM....one of many to follow.
So here's what they believe happened: She ate too many blueberries. They are a low "osmotic" food, which means they take a long time to break down in your system. The skins and seeds especially. Sophie's stomach went to push things along, but unfortunately, when the MASS AMOUNT of undigested blueberry seeds and skins hit the bowel blockage, it caused an explosion of sorts. They had nowhere to go but up and out. They believe she probably threw up a lot in her sleep and by the time she woke up, she was too dehydrated to really cry out or get mama's attention. Dehydration set in quickly and that's where all the "flu like/shunt failure like" symptoms emerged.
They also guessed, because I was weaning , that she may not be taking in enough nutrients and fluids. Her blood tests showed she was anemic as well. When she didn't take in the normal amount of fluids, she probably got a little constipated, hence, the blockage. I was instructed to feed her as much from nursing as I could while we were there, since that is the easiest thing for her to digest, and try food when I felt she seemed able to take them. So, weaning schedule went out the window...OUCH.
She is all better now. Dad is apologetic and pretty much told everyone he walked by, "I fed her too many blueberries and made her sick.". He does not talk about the monitor situation. We squared that conversation away privately and it will not happen again. This was a big life lesson for Daddy and he knows it. He felt so bad that he apologized to Sophie a million times...and to me too for that matter. Mistakes happen. This just happened to be a very scary and expensive mistake.
The good news: The Lucas' have met their yearly out of pocket maximum within the month AGAIN this year. woo hoo! (insert sarcasm)
Angelina Jolie would be jealous...
You see, until recently, she had finally embraced a beautiful sleep pattern where she would sleep soundly through the night. Unfortunately, since our visit to the hospital, (oh yeah...many of you don't know THAT story yet..to be added on another post shortly) her sleep has been a bit "troubled". Anyways, so we snuggled her in between us, and like two grizzley bears in hybernation, curled around her and fell fast asleep.
And I mean ASLEEP. I have been so sleep deprived that when I do go down, it is deep and scary. I don't wake up normally and I have that "who, where, what the hell am I"expression when I wake up.
So there I lay....mama Grizzly in her hybernation state when out of nowhere I am awakened by sound of a "POP/THUD" and then greeted a second later by seering pain on my upper lip.
APPARENTLY, my kid was practicing the "Nestea plunge" and decided to fall backwards so the back of her little boney head hit me square in the mouth. I immediately screamed and said words sailors would be ashamed to hear. Hubby pealed off the bed in record time and was poised for military attack, while Sophie just laid in the bed like, "Dude, I just fell. I started crying and begging for ice, ice, ICE #$%^%^&*^&*)!!!!!! Hubby brings a pack in and thankfully a towel, because there was bleeding involved.
I now have a very lovely "puffy" upper lip. It actually looks pretty normal until you look on the inside, then it is not a pretty sight. How could somebody who can't break the 17 pound mark have enough girth to leave such damage?